In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Do patients have better control of their disease when they communicate with other patients (via support groups, camps, online forums, etc)?
Support groups can be a great opportunity to learn more about the disease from the experience of others. They can be a resource of both good and poor advice. I suspect the overall impact of patient peer support is positive of disease management.
Athletes who regulary compete at high levels often use ice baths to help in recovery. New systems have been created to replicate the benefits of ice baths. These systems, such as Cryo-chambers can achieve similar benefits to ice baths. Many professional athletes are using this system to recover faster for game day. I had the opportunity to try a whole body cryo treatment (2 minutes long) and within a day I noticed a decrease in IBD symptoms. I feel that the anti-inflammatory effect of cryo treatments could be a useful strategy in helping to minimize symptoms of IBD.
Hormonal Contraception Use is Common Among Patients with Inflammatory Bowel Disease and Elevated Risk for Deep Vein Thrombosis
Immunization Rates and Vaccine Beliefs Among Patients with Inflammatory Bowel Disease: An Opportunity for Improvement