In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
This is a Chinese herb that may improve inflammation. It pops up on-line as a treatment but no extensive research has been done.
A study by David Underhill in "Cell Host & Microbe" suggests a link between Malassezia in the gut and Crohn's Disease. Crohn's patients had high concentrations of Malassezia on their intestinal walls compared to almost none in healthy patients. Adding this fungus to the gut in mice exacerbated inflammation seen in Crohn's.
Does the use of (prebiotic) inulin and/or fructooligosacharides help maintain or increase the gut barrier? Does it reduce IBD relapse? Is it safe? What is the optimal dosage? Any contraindictions?
If the use of prebiotics reduces the onset of UC (or chrohn's) or decreases relapses, then that would be a health improvement.
Might a woman first show symptoms and be diagnosed with ulcerative colitis after having a c-section?
I was first diagnosed and showed first symptoms after my c-section then was sick again after my second c-section
How does Crohn's affect or relate to endometriosis? Do the symptoms of one cause or exascerbate symptoms in the other?
I have read articles/studies about a linkage between the two but would like to know more about the relationship.
I have done research and come across positive testimonies of those who have used colloidal silver and found relief/healing. I would like to know more about it from a professional standpoint. The silver was used both orally and as an enema in these testimonies.
Is there disease activity index reduction from supplementing with Vitamin C (pills vs food-source)? Is the effect increased by melatonin supplementation?
My IBD unexpectedly went into remission when I added orange juice to iron-rich meals to fight tiredness/anemia caused by rectal bleeding. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5886961/ https://pubmed.ncbi.nlm.nih.gov/31155592-ameliorative-effect-of-high-dose-vitamin-c-administration-on-dextran-sulfate-sodium-induced-colitis-mouse-model/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5408742/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735700/ https://www.ncbi.nlm.nih.gov/pubmed/20676767 https://www.ncbi.nlm.nih.gov/pubmed/11697548
Steroids are the ONLY medication that has ever worked for my UC. I have tried 9 other medications and none of them get my disease in remission. I also get every awful side effect that steroids cause, so I can't stay on them for very long. I know a lot of other people in this same situation. A version of the steroid that was just as effective at putting the disease in remission and also didn't have the side effects would be worth researching.
Diarrhea is a big problem in IBD, and it can be caused by many different factors. I was wondering if we might help each other by discovering what everyone uses and how well it works.
Not every patient is aware of options for controlling this distressing symptom
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease