In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Trends and Characteristics of Clinical Trials Participation for Inflammatory Bowel Disease in the United States: A Report From IBD Partners
Between 2011 and 2018, participation in randomized controlled trials (RCTs) for inflammatory bowel disease declined while available RCTs in-creased. Younger patients, patients in community settings, and patients with milder disease were underrepresented in RCTs. Nonparticipants had disease activity failing remission criteria, highlighting the role of RCT participation.
Full Scientific Manuscript
Clinical; Trials; older; academic; medical center; severe; disease; sicker; vedolizumab; ustekinumab; tofacitinib; under; age; community; facilities; underrepresented; newest; therapies; free; medication; procedures; all patients have; opportunity
|Research Methods, Alternative Therapies, Medications|
Hormonal Contraception Use is Common Among Patients with Inflammatory Bowel Disease and Elevated Risk for Deep Vein Thrombosis
People with inflammatory bowel disease (IBD) have an increased risk of blood clots due to having inflammation. Other risk factors can include things like smoking, using steroids, and being overweight. Most forms of hormonal contraception (birth control pills) have estrogen which can also increase clotting risk. We studied whether people with IBD that had risk factors for clotting were also put on birth control pills. This could be an opportunity for prevention (as other birth control options are available that do not increase clotting risk). Over 3000 women with IBD completed surveys asking about birth control methods and other risk factors for clotting. Birth control pills were used in over 30% of women with IBD. Women with risk factors for clotting (smoking, steroids, obesity) still had the same rates of birth control pill use as those without these risk factors. Based on this study, it is important for GI doctors to ask patients about birth control use and find out whether they also have other risk factors for a blood clot. By changing the form of contraception, this could prevent a complication of a blood clot in the future.
Full Scientific Manuscript
Blood clots; Deep Vein Thrombosis; DVT; hormonal contraception; contraception; women’s health; birth control pills
Immunization Rates and Vaccine Beliefs Among Patients with Inflammatory Bowel Disease: An Opportunity for Improvement
Treatment for inflammatory bowel disease, or IBD, puts patients at risk of other infections, like influenza or the "flu", which could be prevented by vaccines. In a study of nearly 1000 patients with IBD, not enough said they were getting the vaccines they needed. Patients with a primary care physician and those taking immunosuppressive medications were more likely to get vaccines. The researchers recommend educating patients and encouraging gastroenterologists to ask and counsel patients on vaccines.
Full Published Manuscript
vaccine; vaccination; immunization; immunotherapy
|Alternative Therapies, Lifestyle, Health Maintenance|